My CCM Story

In May 2023, after experiencing several days of headaches, a change in vision, memory loss, and a few other symptoms, I decided to go to the ER, where a bleeding in my brain was found. I was scared; fear inundated my body and soul, and negative thoughts began to assault me. I had been healthy all my life, 42 years old, married, and a mother of three children (13, 11, and 5). There was an additional concern, knowing it could be genetic.

Over the following days, weeks, and months, I underwent numerous tests, exams, appointments with doctors from various specialties, received several diagnoses, underwent genetic testing, experienced another brain bleeding in a different location, and faced another hospitalization, until a neurosurgeon finally said I had multiple cavernous malformations.

Throughout this time, fear, uncertainty, and anxiety prevailed. Not knowing what was happening, the anticipation of waiting to see if something else might occur, and the frustration with the conflicting statements from different doctors made my summer unlike any other. 

In the midst of it all, I turned to God and surrendered. Praying and reading Biblical verses became my priority, providing a sense of closeness to God and my only source of security and safety. A stronger connection with God brought a sense of protection, dispelling my fears. Although there are still days when fear creeps in, anchoring myself in His words ensures that He will uphold me.

My journey with Chain of Joy began a few months before that first ER visit, but its purpose has evolved. Today, I see it as a calling from God to create and sell faith-based gifts, especially for those who need it most: the sick, the anxious, the sorrowful, and the fearful. I humbly view myself as an instrument of God, working to bring peace, hope, and spiritual healing to people like you.

Amidst the trials of this challenging journey, my personal struggles appear insignificant in comparison to the profound hardships faced by many with CCM, AVM, cancer or other illnesses; and my thoughts are continuously with them. I can't comprehend the depth of their experiences, but my heart remains dedicated to empathizing with and supporting them.

I am incredibly grateful and blessed that you are here reading this story. It marks a new beginning for you. May God bless you abundantly.